Jan 12
The bad news has yet been confirmed by another Dr. Today we spoke with Conner’s primary who gave bad news again and then we spoke with the transplant dr. who also gave bad news. The transplant Dr. said to be honest I feel I would be killing your son if he went to transplant and thats not fair for him or you guys. She said her guess is less than 10% chance he would live through the transplant and less than 2% chance the disease would stay gone if he did make it. The other Dr. said 2% is being generous. They both said stopping treatment is basically all thats left, and we have decided this is what we will do. They went into some details of how things end and whats easier and so on. We have received DNR (do not resuscitate)paperwork and dreading signing it. We have asked for an emergency, rush Make A Wish and are waiting for when this may happen. We have chosen Walt Disney World in Orlando FL. We will be heading to PA tomorrow to go to some jobsites and let Conner run some HEAVY equipment and have a fun filled day. Courtesy of ECI Construction, and John W. Gleim Inc. These companies are in for a treat by having the honor to meet our son, and we deeply appreciate the time and money this will cost both of them. Neither Dr. would give a time frame and both seperately said thats up to God. I know in the beginning they had said 2 months with no treatment so this is my guess maybe/hopefully a little longer due to lower leukemia than the beginning. This is a smart, ruthless, unpredictable disease. The hardest part is he looks so good on the outside, but yet the inside is so messed up. I guess Dax’s mom said it best, cherishing every moment…right down till the day Dax died when she said cherished every moment. They have never met but boy do they have so much in common and I’m sure Dax now knows what its like to not suffer from this nasty disease, and when that day comes maybe they’ll meet up and laugh and play. My hunting dog Lady died recently and I’m sure she has all the best pheasant hunting ground scoped out. They can’t hurt but so much with BB guns. Conner has given so many people so many smiles and others so many tears. He grows on you, everywhere we go people come up and talk to him. Not because he looks sick, because he doesn’t. Thats whats weird you would never know he was sick by seeing him. How many plans, dreams, and thoughts can you fit into 2 months.
Daddy
Tags: 6 Comments
Oh I am so very very sorry…I have no words but sit here at my desk in tears for you. I will continue to pray as you face the road ahead.
Kristin (Brian’s mom from clinic)
Conner (& Taylor) I hope you are enjoying the cards – I ‘m making more suprises to send you soon. May God wrap his loving arms around you. We will continue to send prayers up for your entire family.
Vicky has been updating me on Conner. I am praying for this child like he is my own. God is able to do exceedingly abundantly more than we can ask or think! Lord please put Your healing hand on this child and heal him completely…from the top of his head to the bottom of his feet. I will keep praying and am believing for a miracle!!!!!!
Aaron & Karrie ~ You have many prayer warriors here who are storming heaven for your precious Conner, and all of you!…. believing in miracles til the last breath. How blessed Conner is to have such a special family who loves him. I hope you can feel the love, hugs, and most especially prayers coming your way. Tonight I ask Jesus’ mother Mary to wrap you in her arms as she knows this pain. with much love, Sylvia
I don’t know if you’ve talked about how you want all of us involved…I MUST see that little guy! I am so very sad for you and all of our family and it just breaks my heart. But I want Conner’s time left to be amazing and I’ll do anything I can to help with that. I’ll call you guys soon. Love you!
We will continue to pray for a MIRACLE.. May Happiness and Peace fill all your days ahead. Live for today.. Hope & Pray for a brighter tomarrow. We Love you..