Team Stell

Oct 1

Conner is still hanging on. He had a couple pretty good days but now is back bad again. We went to clinic yesterday to get his neck surgery site looked at. He said he heard a pop and when Karrie opened the bandage there was a hole where a stitch had ripped or something. It had never healed since his healing cells are so messed up. So he had a hole in the side of his neck big enough for me to stick the end of my pointer finger in. Luckily it did not bleed. Anyway the surgery team looked at it and thought it would be fine just keep it covered with a nonstick bandage. She also took the 3 stitchs out. We were also trying to get counts done while at clinic. When they tried to draw blood from the white line nothing came out. So they put a solution in the line that breaks up clots and it had to sit in the line for an hour. After the hr they tried again and still nothing so she was ready to flush and heplock. Flushed and tried one more pullback and it worked. So labs were drawn and his counts as we expected were worse. The lowest they have ever been. HGB 4.3 critically low….platelets 7 critically low. Transfusions no longer being an option. We headed back home after alot of people came and said bye to Conner. Last Thursday the doc had told some you better go say bye to Conner cause he probably won’t be back. This morning he was filled back up with fluid. Was grunting and coughing for air. He is having trouble moving air. His o2 saturation was at 60 now is hangin in the upper 70’s and low 80’s. His heart has been beating hard and fast and he is breathing fast. They upped his morphine again to try to slow his heart and breathing down. Now its at 6mg/hr. Not looking real great for the home team. He is mentally still good. In fact he asked me earlier as a secret (shhhh moms not supposed to know) if I could bring the bag of dog food in the room so he could get a piece. Conner has been sneaking dog food for the last couple months that I know of and eating it. You know if it makes him happy go for it. He only likes a certain color too. Its actually funny how much thought and effort he puts into keeping his habit a secret. We are really hoping if this has to happen that it is easy and fast. He has been through enough.
Daddy

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