Oct. 4
Not a whole lot has changed with Conner. If anything he seems a little better on the outside, but quite sure slowly but surely doing worse on the inside. Problem being good healthy cells have a lifespan and die off quite quickly to be replaced by new fresh cells. This is a constant cycle repeated everyday by our bone marrow. Well the cancer cells have no lifespan and don’t die off basically bullying out the good cells. So now he is left with a large quantity of useless blast cells that keep being made and never leave. This is why his counts have and will continue to drop. Even when transfusions were working they only worked for a few days to a week then them cells would die off only to not be replaced. He has mainly slept for the last week with a few minutes of awake time here and there. He drinks tons of milk and hasn’t had real good luck with keeping any solids down. When he went through this in May where he didn’t eat for a week or so it wiped out all of his fat and most of his muscle. Which never returned and now there is nothing left for his body to really live off. All these factors is why this time seems like the last. We have spent the last couple days putting together a slideshow to be shown at his service if and when that day comes. We have picked our music and done 10 big picture frame arrangements. I spoke with his main doc today who always checks in even while on vacation. When I ask ?’s its hard for her to give answers simply because he is the exception to the rule. She said today Conner is unbelievable and we have all been sensational throughout this whole process. You wonder if they say this to everyone, but the Conner part I believe to be true. We strive on every awaken moment. We were supposed to go fishing in our pond the morning all this turned again and as soon as he gives the word the wheelchair will be out on the dock. I might have to give him some extra dogfood for energy! Speaking of…I had to try a little bite the other night to see what the big deal was. Well no one rush to the store it isn’t that great. 
Daddy
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We are still covering you all in our prayers. We pray for strength, peace, and yes, we are still praying for healing!:) May you feel God’s Presence and His Love all around you today. We love you all very much!
Uncle Karl and Aunt Becky
You are in my prayers every day – god bless you all.
Thanks for the update. I was at Duke all day with my Mom at the brain tumor center. I thought of Conner often while we were waiting for her appointments. It just isn’t easy!! Pleae give Conner & Taylor both a great BIG HUG from the Long family.
Praying for you all. What an example Conner is to us all – of a fighter, a lover, someone excited by life’s little adventures, someone making the most of every moment even during these tough times. I also admire his humor, that grin! I can’t imagine how this all feels to you – well, actually, I can imagine – …You are amazing parents, and I’m still praying for God to bless you with a miracle. God bless you, God cover you with His grace, his peace, and his love.
We do not know each other, but have alot of mutual friends. I just want you to know that my prayers are with you and your family. I will continue to pray for you every day. Just know that you and your family are in my thoughts and most of all my prayers.
I heard of your son Conner through a mutual friend, Carrie Hill. I am humbled by his strength he probably doesn’t even know he possesses. Please know that here in Michigan, there’s a prayer circle going for your Conner–and his family. May God continue to bless you all, and bestow upon you strength, support, and lots of love.
All the best from MI–We’ll be praying—Betsy Aiello