Oct 8
I have been trying to keep up a little better than before and still find myself forgetting. The last few days have been about the same. He might be awake 30 min to an hr out of the 24 hr day. And some how his mother manages to be by his side almost constantly. When I write these posts I only share my special moments and my special feelings. Not on purpose but I just don’t know her feelings and moments that are important to her. Well she is not one for speaking, typing, whatever it is in front of a crowd. Its funny how when a kid doesn’t feel good they want mommy. I can remember when I was a kid I was always a daddy’s boy but as soon as I didn’t feel good. I quickly turned into a mommies boy. My neighbor is a retired police officer and he was telling me that numerous times grown men in hurtful or bad situations would ask for there mom. Funny how that works. So whatever my moral to this story is it needs to be clear that this has and will be a team effort. Just because I don’t share a lot of things doesn’t mean they don’t happen. My wife has handled this whole thing better than I could ever dream of myself. On occasion she has to take care of her husband and child. I just want everyone to know that its easy to type and make all sound so great. And I hear so many posts about how strong and amazing we are. Yes this may be true, but I feel as if anyone would be the same way if put in the situation. This is not something that I dreamed of as a boy growing up. I don’t ever remember thinking that the perfect family included a child with terminal cancer. That being said, I wouldn’t trade my life for anyone else’s. That’s just how best buddies are. You know I loved my son before this happened. But now it is a different kind of friendship and love than anyone that hasn’t lived it can understand. I have learned a lot more from a 4 yr old kid than I can ever remember learning from anyone else I have came in contact with. The courage, strength, and will to live that he shows on a minutely basis is unbelievable. Whether he lives another hr or another yr thats up to God, as he has shown over and over. If his day comes before mine O how I will miss my son, but more important bestest buddy.
Daddy
Tags: 5 Comments

Aaron – Thanks for the update. We are all so blassed to have access to you and your remarkable family. God is amazing. We will keep you, Karrie, Taylor and Conner in our daily prayers. Thanks so much for taking time to share.
Thanks for sharing your feelings. You all are being covered with God’s Presence and His Amazing Love. He is holding you and carrying you. God Is Love!!! You all are sharing and showing His love with each other, as well as all of us! We love you, Aaron, Karrie, Taylor, and Conner!!!!oxoxox Lots of Love, hugs, and continual prayers,
Uncle Karl and Aunt Becky
Aaron just a note to let you know that if we can do anything we will make the drive any time I know that y’all are in our thoughts here at all times
Been praying for you for months and wearing an orange Team Stell bracelet that was given to me by my LLS Team in Training coach, Chuck Smith here in Richmond. I am the mom of 3 boys (9, 6 and 2) and I know I cannot begin to grasp what you’re going through. Lean into the Lord, He has you all in the palm of his hand.
How is the Little guy doing?
Always in my Prayers and thoughts that each day will be a better one.